Föräldrars behov och uppfattning om information från vårdpersonalen när deras barn insjuknat i diabetes.
Diabetes mellitus type 1ParentsInformationNeedPerceptionDiabetes Mellitus Typ 1FöräldrarInformationBehovUppfattning
The aim of this literature review was to describe how the literature presents parents? need for information and how parents perceive the information from care personnel when their child 0-18 years of age is diagnosed with diabetes. The literature search was performed in the databases PubMed and Cinahl. Thirteen articles that met the inclusion criteria were studied. The results showed that when a child is diagnosed with diabetes the whole family faces a new situation and the parents are in great need for adequate information from care personnel to be able to deal with the new life situation and participate in the care. The parents? need for information varied over time and between different individuals. Parents perceived the information from care personnel differently depending on the point in time at which they were given the information and on the way the information was conveyed. Sufficient information made it easier for parents to cope with the new situation. Insufficient information meant worries and difficulties in finding new strategies to live with the disease. Difficulties in understanding and lack of continuity and follow-up of the information could lead to conflicts in the family. The authors conclude that it is important that there be well worked out guidelines for care personnel, advising them both how to give information to parents with children newly diagnosed with diabetes, and what form this information should take.