Varför förstår inte mamma?
En kvalitativ studie om barn till föräldrar med utvecklingsstörning
The aim with this study is to through a research summary review experiences of growth and theparents caring ability among children who has grown up with parents having intellectual disabilites,and by empirical data illustrate how these persons today describe their childhood, their parentscaring ability and other cicumstances that have affected the growth. The results from the researchsummary are then to be compared with the results from the empirical data in purpose to reviewsimilarities and discrepancies.The study has a qualitative approach and it is based on foundings from earlier research andinterviews with four women whos mothers have intellectual disabilities.In the existing research of this issue there is a clear dichotomy between whether the researchershave focused on either the children or the parents. In both perspectives there are differentconceptions about whether a person with intellectual disabilities have the capacity to care for andraise a child, as there is about how the parents intellectual disaparment affects the child.The womens stories of the childhood are obviously unique, but they also have many experiencesin common, both among themselves as with what has been found in research. Children of parentswith intellectual disabilities have been classified as a risk group, wich has been shown by reversedroles for child and parent, lack of attachment to the parents and by insufficient care. Despite thedifficulties that the women have faced, they describe many parts of their lives in positive termstoday.There seems to be other influences in addition to the parents intellectual capacity that affect theesechildrens outcomes. The informal network has been pointed out as an important factor of howtheese families cope with their daily lives, both by other research and the women participating inthis study. Close contact to at least one other adult beside the biological parents is also consideredpromotive, as well as higher education.Key words: Intellectual disability, child, parenting, attachment, network, dichotomy.