Upplevelser av att vara anhörigvårdare till en person med demenssjukdom
En litteraturstudie
The purpose of this study was to describe the experiences of being a family caregiver for aperson with dementia. A further aim was the inclusion criteria and data collection methods inthe studies presented, and how this may have affected the results of the studies. The methodwas a descriptive literature study with qualitative approach. Data were collected throughdatabases Cinahl and Pubmed using the words: dementia, knowledge, information, support,caregivers, coping, spouses, experiences and family caregiving. Keywords were combined indifferent ways in order to refine the search. Finally, 12 articles were selected for use in thestudy. Results were based on four sub-headings; support and information, dealing withchanges, emotions of family caregivers and dealing with everyday life. Getting rightinformation and knowledge about dementia was highly valued. Many felt frustration at thelack of support and information given by Health Care. Learning about the disease and how tocare for it in the best way possible, was for many families a way to learn to accept the disease.The authors concluded that family caregivers experience a lack of support and informationgiven from health care about what dementia might mean. Family caregivers also experience achange in the relationship with the person with dementia and how to deal with everyday life.