Patienters uppfattning om den information och det stöd de fått och behöver för att hantera sin psoriasis
Background: One of the healthcare tasks is to inform and support patients. Information and support is very important for the management of the disease in patients with psoriasis. Healthcare often focuses on the medical aspects and can easily forget about the individual behind the disease.Aim: To explore what kind of information and support patients with psoriasis receive and need to manage their skin disease.Method: Quantitative study with descriptive design and qualitative elements by analysis of the questionnaire with open questions. The study included 22 participants.Findings: The majority of participants responded that they had received information about various therapies, medications and generally about psoriasis. The information participants most often responded they needed, was essentially continuous information and updates on treatments and knowledge about psoriasis according to medical science. The majority of respondents felt they had received the support they needed and did not specify any further. The support participants mainly wanted was a long-term planning about the individual's disease and treatment, and good availability to the treating medical clinic when needed.Conclusions: The participants had received information mainly about different treatments, medicines and generally about their disease, but there were deficiencies. Participants needed updated information on psoriasis and the impact of lifestyle factors. The majority of participants perceived that they had received the support they needed to manage their skin disease. When participants felt well informed about their disease, it's seen as support itself. The support needed was a long-term plan about the individual and the disease.