Komplexa behov i negativa spiraler
Ungdomar med neuropsykiatriska funktionshinder och dess anhöriga möter skola och vård
This study aims to examine how families that during a long time have lived with neuropsychiatric disabilities have experienced their contact with different authorities. The study builds on qualitative interviews with two young people and five parents, from four different families. Focus in the paper lies mainly on the families' experiences of the school and different care sectors.The result shows that there is a great number of aspects as lack of information, lack of knowledge, dislodges between different authorities lack of support from school and care sectors, incorrect medication and shortage of long-term plans for treatment, which the families experienced as problematic. These aspects have also brought dramatic consequences that have strengthened the disabilities' negative effects.The result also shows that the parents are very active and bears a great responsibility for the child's health. The parents are in large extent alone in search for care, arranging meetings, searching for information, taking care of the children's medication etc. All parents also stated that the disability takes a huge amount of time and that relief would be very welcome.The main conclusion drawn in the study is that there tends to exist a lack of uniform structures related to neuropsychiatric disabilities. Thetreatment and the initiatives that the families received seem in several cases to be more or less arbitrary and resting on individual commitments. The individual experiences of the disability are largely influenced by different persons that the families come in contact with; which refutes the disability in various ways. The deficiency of structure tends to strengthen the disabilities' negative effects, and to decrease the families' feeling of contexts and trust.