Att leva med inflammatorisk tarmsjukdom (IBD)
En litteraturöversikt om vuxna människors upplevelser i vardagen
Inflammatory bowel diseaseCrohn?s diseaseUlcerative colitisPatient experienceNursingQuality of lifeInflammatorisk tarmsjukdomCrohns sjukdomUlcerös kolitPatientupplevelseOmvårdnadLivskvalitet
Background: Inflammatory bowel disease (IBD) includes Crohn´s disease (CD) and ulcerative colitis (UK). The diseases are chronic and have a pattern of relapses interspersed with relatively symptom-free periods. Common symptoms during relapse are diarrhea, abdominal pain and weight loss. Since you have IBD for life it is important to find ways to relate to and cope with the disease. In that process a nurse can be of great help.Aim: The purpose of this literature review was to increase the understanding of how adult patients with inflammatory bowel disease experience their daily lives. Method: The method used was a literature review. A literature search was performed in two separate databases which resulted in eleven examined and analyzed articles on the subject. Results: After the analyze of the articles three different themes emerged: Limitations in daily life, Self-image and self-esteem and finally Self-care and strategies. Several individuals felt limited one way or the other in their daily life. They also described how their self-esteem was affected. Some positive changes due to the disease were also described. For example some changed their exercise and food habits for the better.Discussion: The results are discussed through the perspective of Antonovsky?s (1991/2005) salutogenic view and were connected to how the SOC (Sense of Coherence) was affected. The importance of relatives? support and self-care was also discussed.