Att leva med amyotrofisk lateralskleros
människors upplevelser i samband med en terminal sjukdom
Amyotrophic lateral sclerosis is a progressive neurological disease which causes a slow degeneration of the body. Living with this disease means being exposed to severe strain and every day could bring new losses. Amyotrophic lateral sclerosis does not cause any harm to the intellect, the mind remains unaffected. The aim of this study was to achieve an understanding, and to shed light on the nature of positive life experiences of people living with amyotrophic lateral sclerosis. This literature study is based on detailed examination of three person's narrations taken from their autobiography and biographies. Although each person's story was different, some themes were recurring. The most powerful themes to emerge from this study was the vital importance of a sense of coherence, being able to cope, feeling hopeful, finding quality of life and engaging in good intrapersonal relationships.