Att leva med implanterad defibrillator
En intervjustudie
The study aimed to explore how patients with ICDs experience their quality of life with a focus on everyday life, electric shocks, and how support from the health service is perceived. The studydesign is descriptive with a qualitative approach. Semi-structured interviews were conducted with seven patients. Data collection lasted for three weeks and interviews were conducted in the participant´s homes, at the participants? workplaces or over the phone.The study shows that most participants have learned to live with the ICD. Most participants felt that they had not made any major changes in their everyday life?s and a majority of the participants felt confidence and security regarding their ICD. Electric shocks gave feelings of stress, uncomfortability and safety. During increased physical exertion patients could be concerned about the possibility of getting an electric shock.. The support of the health care was perceived satisfactory and information about the ICD was considered good for several patients. Some participants felt that they had not received sufficient information.Conclusion: Most participants live fulfilling lives and have a positive attitude towards their ICD. Reported stress and anxiety related to the underlying heart disease more than the ICD. The ICD therapy was considered to provide security, although there were concerns about unexpected electric shocks from some of the participants. The support from the healthcare was mostly good. There is a lack of information about the treatment and psychosocial follow-up. Nurses should be sensitive and provide counseling to this group of patients.